Links

Books and Publications

• Icon Health Publications - Sturge-Weber Syndrome
  http://www.icongrouponline.com/health/Sturge_Weber.html
• Marked for Life by Joie Davidow
  http://www.joiedavidow.com/
• Glaucoma and Sturge Weber Syndrome – Some Facts You Should Know (VBF Website)
• Sturge-Weber Syndrome and Port Wine Stain Patterns (VBF Website)
• Simple Things You Can Do to Manage KTS (by Dr. Kamiab Delfanian and Linda Shannon - VBF Website)

Clinics and Hospitals

• Arkansas Children's Hospital
  http://www.birthmarks.org
• Beth Israel Medical Center/Dr. Waner
  http://www.wehealny.org/patients/bimc_description.html
• Hemangiomas and Vascular Anomalies/Dr. Orhan Konez
  http://www.birthmarks.us/
• Mihm's Dermatopathology/Dr. Martin Mihm
  http://www.drmihm.com/
• The Facial Surgery Center/Dr. Marcelo Hochman
  http://www.facialsurgerycenter.com
• The Hunter Nelson Sturge-Weber Center at Kennedy Krieger Institute
  http://sturgeweber.kennedykrieger.org/index.jsp

Foundations

• About Face USA
• Anomalie vasculaire - French language site for vascular malformations
• Auditory Neuropathy
• Because I Care Foundation
• Birthmarks.com/Port Wine Stain Support Group
• Changing Faces
• Nederlandse-Sturge-Weber-Vereniging (NSWV) - Dutch Sturge-Weber Foundation
• KT Foundation
• Sensory Integration Network
• Sturge-Weber Foundation (UK)
• The Pediatric Glaucoma & Cataract Family Association
• Vascular Birthmarks Foundation
• VBF Europe
• The Hemispherectomy Foundation

Support Groups

• PHACE Syndrome Community
• Sturge-Weber Syndrome Support Group of New Zealand
• SWC Talk Community
• Vascular Birthmark Support at MSN.com
• Birthmarks and Hemangiomas Support at iVillage

Personal and Family Websites

• Alexa's Progress
• Austin's World
• Brenda's Website
• Geoff's Website
• Hank's Website
• Benjamin's Website
• Gabrielle's Website
• Beverly's Website
• Hank's Journal at SWSC
• Stephen Dale Project

Commercial Websites

• LeiLani
  Paramedical Camouflage Makeup Specialist
  Phone: 778-896-4891
  Email: info@sweetleilani.com
  Website: www.sweetleilani.com
  LeiLani offers her services free to patients with port wine stain and other vascular birthmarks who feel they would like to wear camouflage makeup.

Resources – SWS and Medical

• Contact A Family/SWS
• Epilepsy Action/SWS
• Health Link/Medical College of Wisconsin/SWS
  http://healthlink.mcw.edu/article/921988762.html
• National Institute of Neurological Disorders and Stroke

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Always seek the advice of a physician or other medical professional for diagnosis and treatment. The SWSC and/or VBF are not responsible for the content or accuracy of any information, advice or links on the site.

The SWSC is a branch of the Vascular Birthmarks Foundation. VBF is a fully approved not-for-profit. Your donations are tax deductible.
Federal Tax ID 16-1515227