Disclaimer and Privacy Policy

The Sturge-Weber Syndrome Community considers your privacy with the utmost importance. Please know that, due to the nature of the Internet, communications with the Sturge-Weber Syndrome Community cannot be made totally private. If you wish to write to us, use our online Discussion Forum, or communicate by email, the Sturge-Weber Syndrome Community is not responsible for your privacy. In our Discussion Forum, information that you put in may be public. The Sturge-Weber Syndrome Community may contact you, by email or regular postal mail, but will not sell, rent, lease, or otherwise make your information public.

Disclaimer

Always seek the advice of a physician or other medical professional for diagnosis and treatment. The Sturge-Weber Syndrome Community and/or Vascular Birthmark Foundation are not responsible for the content or accuracy of any information, advice or links on the site. In case of links that go outside of this site, the Sturge-Weber Syndrome Community or the Vascular Birthmarks Foundation is not responsible for the content or accuracy of any information on other site.

Privacy Policy

Information Collection and Use
The Sturge-Weber Syndrome Community is the sole owner of the information collected on this site. We will not sell, share or rent this information to others in ways different from what is disclosed in this statement.

Log Files
We may use IP (Internet Protocol) addresses to administer the site, track user movement and gather demographic information for aggregate use. IP addresses are not linked to identifiable information. This information is only used to upgrade and maintain our web site.

Links
This website may contain links to other sites. We are not responsible for the privacy practices of other sites. Read the privacy statements of each website that collects identifiable information. The Sturge-Weber Syndrome Community does NOT pass on identifiable information in links.

Security
This website takes every precaution to protect users' information. When users submit sensitive information via the website, their information is protected both online and offline.

Sensitive Medical Information
The Sturge-Weber Syndrome Community does, by its nature, sometimes become aware of sensitive medical information through the Ask the Doctor feature. This information is used internally and not sold, shared, or rented by the SWSC. Any photographs, drawings, descriptions, or other visual means of representation of medical conditions remain the property of the patient and will not be displayed on this web site without permission from the owners or guardians.

Discussion Forum
The use of the Sturge-Weber Syndrome's discussion forum is voluntary. This forum is public and provided to the users as an informational and support tool. The Sturge-Weber Syndrome Community cannot be held liable for any information, photographs, or personal information displayed there.

Site Usage
The Sturge-Weber Syndrome Community makes this site available for the sharing of information. All information contained herein is the sloe property of the Sturge-Weber Syndrome Community, including, but not limited to, the information on the Discussion Forum. It may not be copied, distributed, or used in any print, online media, or any other media vehicle without our express permission.

Always seek the advice of a physician or other medical professional for diagnosis and treatment. The SWSC and/or VBF are not responsible for the content or accuracy of any information, advice or links on the site.

The SWSC is a branch of the Vascular Birthmarks Foundation. VBF is a fully approved not-for-profit. Your donations are tax deductible.
Federal Tax ID 16-1515227