Use of the Atkins diet for children with Sturge-Weber Syndrome
Principal Investigator: Eric Kossoff, MD
For more information, contact Dr. Eric Kossoff at 410-614-6054
A pilot study of the modified Atkins diet for
SturgeŚWeber syndrome (pdf)
Other Vascular Birthmark Related Research:
The Effect of Facial Hemangiomas on Psycho-Social Development
Elissa Uretsky- Rifkin, M.Ed. CMHC is conducting this survey for
This study has been approved by the Human Studies Committee at The
Washington University Medical Center in St. Louis, MO. If you are
14 years old or over and would be willing to answer three short
questionnaires, please volunteer for this research study. This study
is investigating the psycho-social impact of growing up with an
hemangioma on the face.
You must meet the following criteria to be in the study:
- Your birthmark must have been diagnosed as an hemangioma (either
deep, superficial or mixed), NOT a Port-Wine Stain or other type
- You did not receive any treatment prior to age 14 to remove,
lighten or reduce the Hemangioma.
- It must have covered at least 10% of the face (size of an egg)
and been visible to other people.
- You must have attended a public or private school. (not home
- You must be able to fill out the questionnaire without help
from another person.
- All participants must sign a consent form, and if you are under
18 years of age a parent or legal guardian must sign and approve
your participation in the study.
All information is strictly confidential. Your answers will be
sent to the scoring coordinator anonamously (without your identity
Elissa Uretsky- Rifkin, M.Ed. CMHC
Clinical Mental Health Specialist
Check back for updates on future research projects.